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IBelieveInYou that makes total sense.

Dear Listen,

It is good that you found us; bad that you had too. Your grief is very new and what you are feeling is totally normal and reasonable. I'm at 1.5 years since the passing of my young wife (she was 50). It still hurts and I still get down in the dumps about the future. Reach out to your friends and tell them what you need. Our culture doesn't know how to handle death well so you may need to be direct with them. If there is a mental fog, don't push it away. It is there to protect you. In time you will be able to see things more clearly but for now, just concentrate on putting one pant leg on at a time. 

You still have a future that you will have to walk through. It will be hard but you can do it. Know that we are here to listen to you and respond. Please take care of yourself and let us know how you are doing. You are in my thoughts today. 

Hi, I’m Mary,

My husband Rick died 9 months ago after struggling with Early Onset Alzheimer’s for at least 5 years.  Rick’s father was diagnosed with EAOD in 1993, 3 years after we were married and the year that our son was born.  EAOD was Rick’s biggest fear and the possibility that he would develop it weighed heavily on my mind.  He told me repeatedly through the years that if he were to be diagnosed, he would end his life.  His doctors spent 3 of those 5 years attempting to rule out every other possible cause for the loss of his memory and cognition.  By the time, we faced the fact and he was diagnosed, taking his life wasn’t a concern.  He passed just 17 months after diagnosis. He was 58.  We were married for 25 ½ years. 

Grieving the loss of Rick started long before his actual death.  Watching him progress through this horrific disease was gut wrenching.   The illness, I believe plays a big part in how I’m getting through grief now.  I had time to make sure paperwork was in order, time to make some pretty important decisions, time to tell myself I was prepared. For the most part, I think of Rick as he was before he became ill.  Somehow, the worst of times during his illness are buried pretty deep but I've learned, on the days when I'm aching for him the most and I don't think I can go on, I can pull up some of the worst memories and be grateful that he's now health and free.  Had Rick died a sudden death, it would have destroyed me.

Hugs to you, WV.

Thank you!   

Hello Mary xx
I'm so sorry for the loss of your husband Rick xx
What a terrible disease Alzheimer's is and for it to affect younger people too is just heartbreaking.
Your words caught my eye tonight. I lost my husband very suddenly and very recently to a brain haemorrhage and it has destroyed me as you mentioned here. It's just heartbreaking and soul destroying and I have no words tonight. I wish everyone here some kind of comfort in any way because this indescribable loss of our partners is the absolute worst pain imaginable xxx

Thank you so much!  Only those of us who have lost our partners can understand this level of grief. We've lost the person, the relationship and the hopes and dreams for the future. 

I made the choice, about 3 months ago that I do want to live, just as Rick would have wanted me to. I want honor him by going on, not by giving up.   As long as i don't think,  too much about that lays ahead... I'm ok. 

So Sorry Mary,

My sister was diagnosed with Dementia that leads to Alzheimers.  I noticed a difference in her at my husband's funeral. I had not seen her for sometime as I live out of state. I observed that she was not dressed as sharp as normal and could not  remember how to separate the recycling from the garbage even though I showed her several times. I also noted that she had pack odd side shoes to come to the funeral but I put it down to rushing. My sister had worked on wall street prior and had a newborn very late in life so she never returned to work. So she was a smart one who had suddenly changed.  Our family is going through grief of in anticipation of what is to come.  I feel for you but I also know that you will live again. Not the same Mary but a changed and very different person. Adversity does strange things to us.

I am so very sorry about your sister's diagnosis.  Alzheimer's is horrific.  Rick progressed so fast that he skipped through the worst parts of it and for that. I'm grateful that his journey is over. 

There's a site on FB that I belong to for caregivers and families of those with early onset ALZ but many are caregivers those in their 70s, 80 and even 90s. Some members of the group have alz themselves and share the journey through their eyes.  It's a private group, anything you post is only visible to other members of the group.  I highly recommend it. Alot of advise and support out there.

thank you kindly. She is now 55.

My name is Ann. 

My husband passed away on 08/08/2016.  Like so many before me (I'm assuming), I was numb for about 3-4 months......then I started to some around.  I live in the low desert of So. California.  I did attend a hospice run grief group for about 2 months, but there were so many personal issues, the group did not do me a lot of good after the initial shock.  Some of those issues have resolved themselves, thankfully.  However ---- the big however, new ones have begun to arise.

I have had to go back to work, which is good & bad.  I need the money.  I was not fully prepared for this loss, although I saw it coming & tried to prepare for it.

I'm starting to "come back to life" in a manner of speaking.  I'll have to figure out some of the new issues, as an older female used to being married. 

I'm grateful this group is here.

So sorry Ann,

It takes a while to get your life back on track and to heal your heart.  I do not think that you will ever be the same as previous. However you will be fine. It has been over 5 years for me (eight+ including the illness). So much has changed and I miss him dearly. I am doing different things now. For instance today I was learning excel at 61 years old.  I am working again and enjoying the work. Not like before when I had so much other responsibility. I hated the work then. I fill my time with anything new and creative.  


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