A community of peers created by the Soaring Spirits Loss Foundation
Long-term illness
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For those widowed by cancer AND other illnesses or long term conditions that required caregiving.
We now also have a "Long Term Illness" discussion forum in the PERENNIAL main forum. Questions? Widville@gmail.com
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Comment by alliot123(Susan) on May 4, 2013 at 9:06pm -
His brain was mapped which is why I don't understand it being missed entirely. Thank you all so much for your prayers and thoughts.
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Comment by alwayshopeful (Jocelyn) on May 4, 2013 at 8:45pm -
Susan. Unfortunately, I know more about brain tumors than I ever wanted to. Honestly, I never heard of a surgeon missing it. My husband's brain was mapped before his surgery. Believe me, there are a bunch of us here who are familiar with brain tumors. We are thinking of you and sending positive thoughts to your family and the new medical team. Please take care of yourself. I can't imagine how horrible this is for you. Let your friends and family help. Don't overdo it.
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Comment by alliot123(Susan) on May 4, 2013 at 8:30pm
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We are arranging for him to go to the University of Utah Medical Center. Just don't understand how the whole tumor was missed
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Comment by Suz on May 4, 2013 at 8:26pm -
Oh, Susan. I am so sorry to hear this. It is just a travesty. Such heartbreak for your family. I hope you will be able to find another surgeon who knows what he is doing and I will keep you all in my prayers!
Big hugs,
Suz
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Comment by alwayshopeful (Jocelyn) on May 4, 2013 at 8:21pm
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Susan. I am deeply sorry to hear this. It's unthinkable what your family has to go thru. My husband had a 99% resection of a glioblastoma at a Philadelphia, PA hospital. If that is somewhere near you, please message me and I will tell you who his neursurgeon was. Prayers coming your way.
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Comment by alliot123(Susan) on May 4, 2013 at 8:17pm
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Yes there is no way he is going back to that surgeon and they will not pay a dime to the surgeon or the hospital. Fortunately there are multiple hospitals in our area.
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Comment by Joyce on May 4, 2013 at 8:03pm -
Oh Susan, I'm so sorry that's terrible, maybe he should get another surgeon?
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Comment by alliot123(Susan) on May 4, 2013 at 7:51pm
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The results of the post-surgical MRI came back and surgeon missed the tumor. It is still in my son-in-laws brain and he has to be reopened. The surgeon did not get any of it out he took out healthy brain tissue. I just can't believe my kids have to go through this back behind where this journey started.
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Comment by alwayshopeful (Jocelyn) on May 3, 2013 at 5:35pm
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"When we awaken the sleeping lion of potential within, we allow it to spring forth with a mighty, joyful roar."
Karla Dornacher again.
Beautiful weather here in PA. Hoping for a day when we can all realize our potential in life again!!
Jocelyn~
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Comment by Texas Sue on May 3, 2013 at 6:45am -
Dear Susan, hope the pathology report gives you an additional all clear! What great news! Thank you God for answering our prayers!
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