A community of peers created by the Soaring Spirits Loss Foundation
5 Months Ago
5 months ago Patrick got his new, healthy heart. For the first time in 36 years he had a normal heart. Normal blood flow.
That was supposed to be the beginning of a new life for us. He was supposed to be able to do things others took for granted. Like walking from the couch to the bathroom without gasping for air.
Patrick lived 35 days with his new heart. He was awake and happy for 12 of them.
Not a day goes by that I don't think about his donor or their family. I thank them every day for the little time they gave me with Patrick. To Patrick, having a normal healthy heart was the best thing that could ever happen to him.
I wanted many many more years. My heart is broken into a million pieces. Not just for me and my kids, but for the donor's family. They lost their loved one and made a selfless choice to donate their organs, only to lose his heart again.
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Comment
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Comment by bj628(Bonnie) on August 6, 2012 at 10:47am -
OH, Everyday Morning, I am so sorry for your loss. and for the donor family. We donsted John's cornea's and did get a letter saying ..they were transplanted sucessfuly .. so now 2 people can see.
((((((((((((((((((HUGS)))))))))))))) hope to meet and talk to you in chat sometime. Chat is a great group for real time support
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Comment by telechick on August 6, 2012 at 9:07am
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I am in a similar situation - my husband received 2 livers from two selfless donors within a 6 week period and he still died. I often think about the donors' families and hope that they know that even though Corey didn't survive, their gifts were wonderful and gave him a second chance at life, even though it didn't pay off in the end. What makes it more difficult for me is the fact that the second liver was working perfectly when he died and wasn't the cause of his death.
I know they don't know anything about Corey or his subsequent death, but I hope that somehow they know that I am forever grateful for their gifts.
It was supposed to be the beginning of something new - but something positive, not what we ended up with. Many hugs to you.
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Comment by kimkirt (KK) on August 6, 2012 at 8:20am -
I am so sorry, the sadness is so profound in your writing for both your family and the donor's family. Hugs to you as you continue along this journey.
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