A community of peers created by the Soaring Spirits Loss Foundation
Billie and I doing a cover of Joan Armatrading's exquisite song, Willow. This was 3 months after Billie had the tracheostomy...and had lost his ability to sing or speak...and with the feeding tube as well, we had thought our music days were over. But Billie never gave up, and right at Christmas, we were able to play this and three other songs and recorded them. We sent them as Christmas gifts to those who would appreciate them. But Billie wanted to redo this one, so we never sent it out..we had been mostly sleepless for so long at this point, we were both exhausted, but the song, the love, well, you'll see. Thanks for letting me share this.
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Comment by Cristina on November 8, 2012 at 2:32am Navillus, Thank you. It was a lifeline to us, the music. I wrote back then "I will keep living for each one more song...." We should talk sometime, you and I, about our men and being their voices....
Comment by Navillus on November 6, 2012 at 2:16am Cristina, thanks for sharing this video and the music. It's wonderful that you were able to continue to share your music, even after he lost his voice. The last 12 months my husband also couldn't speak. We managed to communicate very well, regardless, until he got so weak he couldn't even write notes. I was his "interpreter" at all of the medical visits, and it really brought us closer. But seeing you two making music together is beautiful.
Comment by Cristina on November 3, 2012 at 11:29pm Thank you so much, it does my soul so much good to share this with you all, who really understand what this is. What it is to love like this, and now be on earth without him. Yes, Billie was precious, beyond my means to describe, how kind and funny and sweet and truly, brilliant, and talented and warm and wonderful, a story-teller, a man who had worked hard since the age of four, full-time since the age of eight...and was the light, quietly, gently, anywhere he was. He made us laugh, his music...oh, how to approach in words, what he did for people. I can't now. Just, thank you. Thank you all for letting me talk about my beautiful man.

Comment by Steve on November 3, 2012 at 2:46pm Awesome
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