This page was created specifically for those whose loved one died from any type of rare disease that is not listed under our Widowed by Illness category. We realize there are many widowed people seeking others who share their unique experience with a rare disease that has significantly changed their lives. On this discussion board, please feel free to share your widowed experience with any rare disease. Perhaps someone else will find they are not alone due to your courage in sharing your story here.
Please click on the Discussion link in the sidebar to share your experience. Discussions related to the ways in which the complications associated with the rare disease with which you became intimately familiar impacts your widowed life are welcome here.
Rebuilding your life after the death of a spouse or partner takes courage and determination. Your widowed community is behind you every step of the way.
Click on these links for access to healing resources such as books, videos, articles and documents related to your specific widowed journey. For additional support, connect with other widowed people by joining virtual meetings, groups and discussion forums.